Few things a doctor does are more important than relieving pain. . . pain is soul destroying. No patient should have to endure intense pain unnecessarily. The quality of mercy is essential to the practice of medicine; here, of all places, it should not be strained.
I had learned quickly that life doesn't always go the way I want it to, and that's okay. I still plod on.
People who don't see you every day have a hard time understanding how on some days--good days--you can run three miles, but can barely walk across the parking lot on other days,' [my mom] said quietly.
I often wished that more people understood the invisible side of things. Even the people who seemed to understand, didn't really.
The video was still playing, although I didn't know why. It seemed as if the able-bodied dancers were mocking me.
The weekend was a much-needed breath of fresh air; Monday always seemed to not only take that breath right back, but add a few extra pounds to my shoulders as well.
Dancing with a spinal cord injury is a challenge like no other, but I aspired to prove to myself that I could still be phenomenal dancer even with an SCI
Of pain you could wish only one thing: that it should stop. Nothing in the world was so bad as physical pain. In the face of pain there are no heroes.
Mental illness People assume you aren’t sick unless they see the sickness on your skin like scars forming a map of all the ways you’re hurting. My heart is a prison of Have you tried?s Have you tried exercising? Have you tried eating better? Have you tried not being sad, not being sick? Have you tried being more like me? Have you tried shutting up? Yes, I have tried. Yes, I am still trying, and yes, I am still sick. Sometimes monsters are invisible, and sometimes demons attack you from the inside. Just because you cannot see the claws and the teeth does not mean they aren’t ripping through me. Pain does not need to be seen to be felt. Telling me there is no problem won’t solve the problem. This is not how miracles are born. This is not how sickness works.
A common misconception is that some people are only in pain because they are weak, anxious, depressed, or do not deal well with stress. This is not correct.Every experience you have — touch, warmth, itch, pain — is created by the brain and thus is all in your head, but it does not mean they are not real.Things like fear, anxiety, or depression can increase pain levels and can increase the chance of persistent pain. But often, these feelings only develop after a person already has chronic pain.
Sometimes, this disapproval of how you are managing your pain crosses over to disbelief that you are in as much pain as you say you are. They don’t believe that your pain is a legitimate enough reason to rest or nap or cry or take narcotic medications or not go to work or to go to the doctor. They might think that you are making too big of a deal out of it. They doubt the legitimacy of the pain itself.This kind of stigma is the source of the dreaded accusation that chronic pain is “all in your head.” It’s as if to say that you are making a mountain out of a molehill.
Tell me, what kind of functions does pain have when one is convicted to 100 whippings in Saudie Arabia? You claim pain has a function, I claim that's scientific rubbish. The only thing pain really does is cause an instant reaction that is not rational and usually quite erratic. The famous example of the hand in boiling water, for example. You say it proves pain has a function. But exactly because of the spasmic reaction lots and lots of people will drop the bowl with boiling water over their entire bodies causing serious burns. So what was the 'function' of this pain? Pain and fear cause confusion and trauma. If pain actually did have a rational function, chronic pain would not exist.
Healing severe or chronic pain, I believe, includes transforming our relationship to the pain, and, ultimately, it is about transforming our relationship to who we are and to life.
I surmise that later generations will likely scoff at the means by which we are currently addressing pain as well.
My name is CRPS, or so they say But I actually go by; a few different names. I was once called causalgia, nearly 150 years ago And then I had a new name It was RSD, apparently so. I went by that name because the burn lived inside of me.Now I am called CRPS, because I have so much to say I struggle to be free. I don't have one symptom and this is where I change, I attack the home of where I live; with shooting/burning pains. Depression fills the mind of the body I belong, it starts to speak harsh to self, negativity growing strong.Then I start to annoy them; with the issues with sensitivity, You'd think the pain enough; but no, it wants to make you aware of its trembling disability. I silently make my move; but the screams are loud and clear, Because I enter your physical reality and you can't disappear. I confuse your thoughts; I contain apart of your memory, I cover your perspective, the fog makes it sometimes unbearable to see. I play with your temperature levels, I make you nervous all the time - I take away your independance and take away your pride.I stay with you by the day & I remind you by the night, I am an awful journey and you will struggle with this fight. Then there's a side to me; not many understand, I have the ability to heal and you can be my friend. Help yourself find the strength to fight me with all you have, because eventually I'll get tired of making you grow mad. It will take some time; remember I mainly live inside your brain,Curing me is hard work but I promise you, You can beat me if you feed love to my pain. Find the strength to carry on and feed the fears with light; hold on to the seat because, like I said, it's going to be a fight. But I hope to meet you, when your healthy and healed, & you will silenty say to me - I did this, I am cured is this real? That day could possibly come; closer than I want- After all I am a disease and im fighting for my spot. I won't deny from my medical angle, I am close to losing the incurable battle.
It's not easy to diagnose because depending where the endometrial deposits are, the symptoms can be quite different. It's an unrecognized problem among teenage girls, and it's something that every young woman who has painful menstruation should be aware of ... it's a condition that is curable if it's caught early. If not, if it's allowed to run on, it can cause infertility, and it can really mess up your life.[Author Hilary Mantel on being asked about being a writer with endometriosis, Nov 2012 NPR interview]
But I had to think to myself that this was normal, because that was the attitude. I was 19 when I went to see my doctor and I was told it was all in the mind.[Author Hilary Mantel on being told her endometriosis was imagined pain, From Oct 2009 Daily Mail interview]
If your body is screaming in pain, whether the pain is muscular contractions, anxiety, depression, asthma or arthritis, a first step in releasing the pain may be making the connection between your body pain and the cause. “Beliefs are physical. A thought held long enough and repeated enough becomes a belief. The belief then becomes biology.
If I only could explain How much I miss that precious moment when I was free from the shackles of chronic pain.
There are a lot of victims when it comes to addiction. I know there's an overdose epidemic. We see those faces. But then I see these other faces - the ones who commit suicide because they can't handle the pain. Those faces mean just as much to me.
When all you know is pain you don’t know that that is not normal. It is not a woman’s lot to suffer, even if we’ve been raised that way.It is not OK to miss a part of your life because of pain and excessive bleeding.It is not OK to be bed-ridden for two-to-three days a month.It is not OK to pain during sex.It is not OK to have major bloating or na
Deepening awareness and nonjudgmental acceptance of one’s thoughts fosters a new relationship with them, creating the space to purposefully shift mental focus away from the ruminative thought patterns that pave the road to suffering.
My doctors, who are not cavalier with prescriptions, give me this medication because I have earned their trust. And yet, with mounting government and public pressure, my doctors’ hands are becoming increasingly tied. They apologetically explain to me why they are required to make the medication even harder for me to get, against their own medical judgment. If the day ever comes when they aren’t allowed to prescribe Percocet to me at all, it may well be the end of the minimal quality of life I fight so hard to achieve.
Since my symptoms began 13 years ago, I’ve tried every form of pain management I could access — NSAIDS, nonopioid analgesics, neurologic medications, acupuncture, laser therapy, physical therapy, prolotherapy, massage, and trigger-point injections. Most of these have been unhelpful; others provide temporary relief, often at great expense. At the end of the day, when my body is fully depleted of its resources and in the most pain, a single dose of Percocet is the only tool that silences the pain enough for me to fall asleep.I honestly don’t know what I’d do if Percocet became unavailable to me, and the very thought scares me. I’ve been taking it for five years. To avoid any chance of addiction, I only take it at night and have stayed on a consistently low dose.
We have a genuine and devastating epidemic of opiate abuse in this country, and it is of critical importance that this problem be addressed. But we must do so in a way that doesn’t cut off an effective (and often the only) treatment for the chronically ill, many of whom are able to function in this world at all only because of the small respite that responsible opiate use provides.
Government agencies are trying to get doctors to cut back on prescribing opioids. I understand that they need to do something about the epidemic of overdoses. However, labeling everyone as addicts, including those who responsibly take opioids for chronic pain, is not the answer. If the proposed changes take effect, they would force physicians to neglect their patients. Moreover, legitimate pain patients, like myself, would be left in agony on a daily basis.
The addiction crisis is terrifying, and many people don’t comprehend appropriate opioid use. When I first started taking pain medication, I remember a family member saying, “Dianne, you’re going to become an addict!”We need to help people understand that taking pain medicine to maximize one’s ability to be productive and to sustain enriching relationships is very different than the disease of addiction, which limits one’s ability to contribute to society and maintain healthy habits.
Anyone who takes opioids on a regular basis will become dependent upon them, meaning they will have to taper off gradually to avoid withdrawal symptoms. But very few chronic pain patients exhibit the compulsive drug-seeking behaviors of someone who is addicted.
Several medical professional organizations acknowledge the utility of opioid therapy and many case series and large surveys report satisfactory reductions in pain, improvement in function and minimal risk of addiction.
Despite what appears to be a low risk of addiction in naïve, chronic pain patients, it is reasonable to ask how much harm is actually done to patients with chronic pain by withholding opiate analgesics.
I will be living with chronic pain for the rest of my life. I don’t have the mobility, energy or life options I used to have. I work hard to manage the pain, and I want the medical system to be a respectful and effective partner, not a jailer. The opioid crisis is not my doing.
Chronic pain patients like me are not the cause of the opioid crisis; only 22% of those who misuse opioids are prescribed them by a doctor, and only 13% of ER visits for opiate overdoses were chronic pain patients. Most chronic pain patients are rule-followers who just want to function.
There’s a saying that goes something like: ‘We are all one drink or pill away from addiction,’ and I know this is meant to destigmatize what addicts go through, but I feel like I’ve been seeing variations on this ‘common knowledge’ more and more lately being used (on social media) as a cudgel to remind patients to not overdo it,” Anna says, speaking to the dual-edged sword of awareness. A motto designed to humanize the experience of addiction has been turned into a weapon that targets people who rely on opioids for pain management, and that translates to real-world stigma.