Happiness will be fleeting if you constantly search for it in places that can be taken away. It's an inside job.
The thing is, there is no certainty in this life - in one second your entire world could shift. I'm not saying it will, but I am living proof that It can. We never prepare for tragedy and that's a good thing but my god what's it's taught me is how little we appreciate what we have or some cases once had.
I had learned quickly that life doesn't always go the way I want it to, and that's okay. I still plod on.
People who don't see you every day have a hard time understanding how on some days--good days--you can run three miles, but can barely walk across the parking lot on other days,' [my mom] said quietly.
I often wished that more people understood the invisible side of things. Even the people who seemed to understand, didn't really.
The video was still playing, although I didn't know why. It seemed as if the able-bodied dancers were mocking me.
The thought of being able to [move my arms] made me want to give up my legs [instead] since I was accustomed to using them. But, I figured that after a few hours of sitting in a wheelchair...I would switch back...in a flash.
The weekend was a much-needed breath of fresh air; Monday always seemed to not only take that breath right back, but add a few extra pounds to my shoulders as well.
Dancing with a spinal cord injury is a challenge like no other, but I aspired to prove to myself that I could still be phenomenal dancer even with an SCI
The secret of making lasting change is to acknowledge and accept that real change takes time and patience. We didn't get chronically ill overnight. We didn't gain weight in one week or even one month. Good chance, it may take us longer than twenty-one days to overcome whatever we're facing. Whether it's something physical, emotional, spiritual, or a combination, we may need to be realistic in our goals for meaningful change to happen. The first step is getting started!
She has fought many wars, most internal. The ones that you battle alone, for this, she is remarkable. She is a survivor.
I guess it's human nature to question yourself, to question why all the pain has had to happen? sometimes there isn't any answers it just is what it is and how we make ourselves feel and see through that, is what will determine how we move forward.
That is what chronic illness is . . . a disconnect between what our souls can do and what our bodies can do.
I create beautiful art, so I can look back on the life my body fell short of in such a way that it brings me peace.
Mental illness People assume you aren’t sick unless they see the sickness on your skin like scars forming a map of all the ways you’re hurting. My heart is a prison of Have you tried?s Have you tried exercising? Have you tried eating better? Have you tried not being sad, not being sick? Have you tried being more like me? Have you tried shutting up? Yes, I have tried. Yes, I am still trying, and yes, I am still sick. Sometimes monsters are invisible, and sometimes demons attack you from the inside. Just because you cannot see the claws and the teeth does not mean they aren’t ripping through me. Pain does not need to be seen to be felt. Telling me there is no problem won’t solve the problem. This is not how miracles are born. This is not how sickness works.
Chronic illness is hard. Pain is hard. Isolation is hard. The financial cost is hard. Grieving is hard and necessary and sometimes takes far longer than we every imagined.
Recently God asked me the same question in a new way, And if I don't allow you to heal, if I never remove the pain, will you still trust Me?
As I sat up I turned my head to the side, but immediately straightened it again when I felt a sharp pain shoot through my neck.
The disaster, as Dad and others saw it, was the emerging AIDS crisis and the cultural attacks instigated by conservative against gay men and women in the early 1980s. It was found in the cruel indifference of President Ronald Reagan, who wouldn’t publicly address the epidemic until the end of his second term, after twenty thousand Americans had died, and the hostile rhetoric of conservatives close to Reagan like Jerry Falwell, founder of the Moral Majority, and Pat Buchanan, Reagan’s future speechwriter. In 1983, Buchanan wrote of AIDS, “The poor homosexuals–they have declared war upon nature, and now nature is extracting an awful retribution.
Of course, it’s now obvious why he was so angry that day. People don’t move into hospice to live but to die. And that half an egg sandwich I ended up making him–that sandwich was the last meal he ate in our Haight-Ashbury apartment, our one true home.
I thought having a chronic illness would make my life detour in ways I didn't want to accept, but I've learnt that have a chronic illness made the only detours that are worth the growth.
My name is CRPS, or so they say But I actually go by; a few different names. I was once called causalgia, nearly 150 years ago And then I had a new name It was RSD, apparently so. I went by that name because the burn lived inside of me.Now I am called CRPS, because I have so much to say I struggle to be free. I don't have one symptom and this is where I change, I attack the home of where I live; with shooting/burning pains. Depression fills the mind of the body I belong, it starts to speak harsh to self, negativity growing strong.Then I start to annoy them; with the issues with sensitivity, You'd think the pain enough; but no, it wants to make you aware of its trembling disability. I silently make my move; but the screams are loud and clear, Because I enter your physical reality and you can't disappear. I confuse your thoughts; I contain apart of your memory, I cover your perspective, the fog makes it sometimes unbearable to see. I play with your temperature levels, I make you nervous all the time - I take away your independance and take away your pride.I stay with you by the day & I remind you by the night, I am an awful journey and you will struggle with this fight. Then there's a side to me; not many understand, I have the ability to heal and you can be my friend. Help yourself find the strength to fight me with all you have, because eventually I'll get tired of making you grow mad. It will take some time; remember I mainly live inside your brain,Curing me is hard work but I promise you, You can beat me if you feed love to my pain. Find the strength to carry on and feed the fears with light; hold on to the seat because, like I said, it's going to be a fight. But I hope to meet you, when your healthy and healed, & you will silenty say to me - I did this, I am cured is this real? That day could possibly come; closer than I want- After all I am a disease and im fighting for my spot. I won't deny from my medical angle, I am close to losing the incurable battle.
I certainly don’t buy into the idea that positive attitudes can somehow mysteriously directly influence physical health outcomes.
It's not easy to diagnose because depending where the endometrial deposits are, the symptoms can be quite different. It's an unrecognized problem among teenage girls, and it's something that every young woman who has painful menstruation should be aware of ... it's a condition that is curable if it's caught early. If not, if it's allowed to run on, it can cause infertility, and it can really mess up your life.[Author Hilary Mantel on being asked about being a writer with endometriosis, Nov 2012 NPR interview]
Astray from a deep sleep chronic as I write by phonics, like insomnia I will always live the onyx night for revealing, and, upon it, still I'll steal the bright light of day right away just to keep building at speeds hypersonic.
Physically, mentally, emotionally -- it seems like every part of me is broken in one way or another.
Depression affects almost 80% of migraine sufferers at one time or another. People with migraine, especially chronic migraine, also are more likely to experience intense anxiety and to have suicidal tendencies. If we want to live happy and joyful lives with migraine, it is vital that we acknowledge and deal with the emotional realities of the disease.
My love has saved me. It wraps strong arms around me when I cry with despair;it gives me the routine of a working week to lend vicarious structure to my shapeless days. It brings me daily laughter, a reason to keep washing...and it slices me open with guilt.
By staying, by shirking the responsibility and effort of leaving, by continuing to occupy this lovely man while giving him neither children nor a public companion nor a welcoming home-do I do wrong?
And all my ethical reasoning crumbles to ash in the sheer fact of his presence. Because together, even in darkness, we light up a room; because the clotted guilt inside me breaks up and disperses before a surge of stupid happiness; because I love him, and I know I cannot leave him, am incapable of leaving him, unless he asks me to go. And he has not asked me. And that is the miracle which I live with, every day.
Ache my bones, flame my muscles, tingle my nerves, but you will never taint my beautiful mind & I will overcome this condition with the belief that I already have. - CRPS AWARENESS -
If I only could explain How much I miss that precious moment when I was free from the shackles of chronic pain.
What if...the doctors couldn't find anything wrong? What if I was over-exaggerating the pain, weakness, and weird sensations?
Before I knew it, I was once again being whisked down the hallways at the new hospital into an even bigger room, one that, unbeknownst to me, would be my home for what would feel like a long, long time.
All parents set out with expectations, hopes and dreams for their child. When a child is diagnosed with a health problem, these aspirations are altered. While one parent is hoping to see their child graduate from university, another is praying that they can live pain free
Armed with my positive attitude and inherent stubborn nature, I keep my mind focused and my life moving forward. I stop to rest, pout and even cry sometimes, but always, I get back up. Life is giving me this challenge and I will plow through it, out of breath with my heart racing if I have to.
That’s the point. This healthy-feeling time now just feels like a tease. Like I’m in this holding pattern, flying in smooth circles within sight of the airport, in super-comfortable first class. But I can’t enjoy the in-flight movie or free chocolate chip cookies because I know that before the airport is able to make room for us, the plane is going to run out of fuel, and we’re going to crash-land into a fiery, agonizing death.